Episode 67: Living Duchenne with Sara Aluffi

In Duchenne muscular dystrophy, milestones for a child reverse themselves.  Kids eventually regress, moving backwards in their development. 
On today’s episode, Sara Aluffi is on the show to talk about her younger son, Joaquin, who has Duchenne muscular dystrophy.  Duchenne is a rare genetic disorder, primarily affecting males, causing the muscles in the body to become weak and damaged over time. Duchenne is eventually fatal.  Join us, as Sara Aluffi gives us a candid look into their lives, this heartbreaking disease, and the love that binds them, despite the pain.

Sara is the founder of a nonprofit organization called Joaquins Warriors DMD. You can find her nonprofit at joaquinswarriors.com.