Episode 67: Living Duchenne with Sara Aluffi

Episode 67 June 16, 2022 00:52:38
Episode 67: Living Duchenne with Sara Aluffi
Lost or Found
Episode 67: Living Duchenne with Sara Aluffi

Jun 16 2022 | 00:52:38

/

Show Notes

In Duchenne muscular dystrophy, milestones for a child reverse themselves.  Kids eventually regress, moving backwards in their development. 
On today’s episode, Sara Aluffi is on the show to talk about her younger son, Joaquin, who has Duchenne muscular dystrophy.  Duchenne is a rare genetic disorder, primarily affecting males, causing the muscles in the body to become weak and damaged over time. Duchenne is eventually fatal.  Join us, as Sara Aluffi gives us a candid look into their lives, this heartbreaking disease, and the love that binds them, despite the pain.

Sara is the founder of a nonprofit organization called Joaquins Warriors DMD. You can find her nonprofit at joaquinswarriors.com.

Other Episodes

Episode 113

March 28, 2024 00:26:03
Episode Cover

Ep. 113: First 2 Chapters of Untangling

Hello friends! For this episode I'm going to share the first two chapters of my upcoming book Untangling: Liberating Myself from an Enmeshed Family...

Listen

Episode 108

July 27, 2023 00:57:29
Episode Cover

Ep. 108: Journey Through Pain with Alex Soto

Alex Soto is on the show to talk about his journey into understanding the pain that people carry in their bodies.  He is a...

Listen

Episode 83

November 03, 2022 01:00:07
Episode Cover

Episode 83: Boundaries Before the Holidays with Denise Correll

While many of us would like to imagine the holidays to be idyllic, the reality is that  sometimes it's not.   The holidays can be...

Listen